Photo of Harry Harrison News 

Teen Focus Council

CHECT is planning to create a Teen Focus Council, in order to better support teenagers affected by retinoblastoma, and to give them a voice within the charity. CHECT member Kelsey Trevett spoke to Harry Harrison to find out more about the idea… Q: Can you tell me what the Teen Focus Council will be? A: The Teen Focus Council is an opportunity for teenagers to have a voice within CHECT. The idea is to enable teenagers to have a voice in planning events and activities aimed at our age group,…

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Photo of Kelsey celebrating his exam results in the CHECT office with Hayley and Diane Education News 

GCSE results day

On Thursday, Kelsey Trevett joined thousands of children around the country in getting their GCSE results. Here he explains the range of emotions that have been running through his mind since those dreaded exam days… Every teenager is different, but I think there is one thing that pretty much all of us can agree on: exams are a nightmare. Whether it be GCSE exams, A levels or other educational assessments, exams are one of the most stressful, and yet repetitive, aspects of a teenager’s life. I recently collected my first…

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Photo of a man playing Goalball My story News Reviews 

‘I can’t imagine my life without Goalball’

Sixteen-year-old Kelsey Trevett gives the lowdown on Goalball and how it has transformed his life…  As a blind or visually impaired teenager, it can be difficult to find a sport-related activity that is fully accessible: the mainstream games of football, cricket and rugby were, after all, hardly designed with the blind in mind. Goalball is the first, and only, sport designed with the intention of being played by blind and visually impaired athletes, but that’s not to say it can’t also be played by sighted people too. Today, it is…

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Photo of a boy having his eyes tested by an optometrist Interview News 

Spreading the retinoblastoma word

Petra Maxwell is CHECT’s Information and Research Manager; she raises awareness of retinoblastoma among healthcare professionals. She sat down with Kelsey Trevett to answer some questions as to what her job entails, and about working at CHECT… Q: Firstly, could you briefly summarise your role at CHECT, and what you do? A: The main part of my role is to raise awareness among healthcare professionals, including health visitors, GPs and opticians, of the symptoms and tests involving retinoblastoma. I also highlight the importance of urgent referrals for children with symptoms…

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Interview News 

‘Lacey has improved my life in so many ways’

When Kelsey Trevett was 16 weeks old, he was diagnosed with retinoblastoma in his left eye and it was removed. Unfortunately, aged five years old Kelsey was diagnosed again, this time in his right eye. His remaining eye was removed when he was six. Now 16, Kelsey has just finished his GCSEs and over the past year has been adjusting to life with his newest companion, guide dog Lacey. Here Christopher Payne, 13, talks to him about his relationship with Lacey, how she has benefitted him and some of the…

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Photo of Kelsey at the Vision Express store opening My story News 

My involvement with CHECT

From being a Vision Express ambassador to attending one of our residential weekends, Kelsey Trevett, 16, talks about his involvement with CHECT over the years… Having been affected by retinoblastoma throughout my childhood, I have had a strong connection with CHECT for the majority of the last 16 years. Their support throughout my treatment and multiple hospital visits was invaluable to my family and me, and as I’ve got older, the opportunities offered to me by CHECT have been a fantastic way to share experiences, stories and (most importantly) laughs…

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Photo of Christopher Payne and other teenagers at Global radio studios My story News 

CHECT and teenagers – taking the journey together

Christopher Payne, 13, and his family have been involved with CHECT since his diagnosis 10 years ago. Here, Christopher talks about the support he has received and how he is giving back to the organisation to help raise awareness of retinoblastoma… When I was diagnosed with retinoblastoma aged three and a half, there was no one or organisation out there to support me or my family, except CHECT. Being a very rare disease, CHECT is the only UK charity specialising in supporting families affected by Rb, raising awareness of the…

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Interview 

Q & A With Patrick Tonks

Theo Sergiou interviews Patrick Tonks, Chief Executive of the Childhood Eye Cancer Trust Q) Why did you choose to apply for the job at CHECT? A) Two or three main reasons. Having worked in the private sector for over 25 years, I decided that I wanted to do something that had more meaning and purpose, so I decided to move into the charity sector. I knew that working for a charity would mean that I could do something that would make a real difference and help other people. I worked in…

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CHECT photo - Rafael Bagott Education 

Does Rb Affect My Life At University?

Rafael Bagott, who is in his second year at university, talks to Teen Focus about what it’s like to take the plunge into higher education…  “I remember applying for university, confident, knowing that I would definitely get in because I worked hard, and now it’s amazing fun! But I had to address the elephant in the room at some point…” Hi, my name’s Rafael, I’m 19 and I’m studying marine biology at the University of Plymouth. I was in year 13 and psyched about university, we all were but especially…

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Events 

A Weekend Lasts For Years

Eight teenagers headed on another weekend away to Kidderminster! It was a weekend of madness and mayhem… but also something extremely special, as 15-year-old CHECT member Theo Sergiou explains… We arrived on the Friday evening at around 6:30pm, of course me (as usual) arriving at two hours later, missing dinner. However when I arrived my nerves flew out of the room – I was so excited that I wanted everything to go to plan and for us to have such an amazing time. When I stepped through that door, the…

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