Meet the TFC News 

VIDEO: Introducing the Teen Focus Council

The CHECT Teen Focus Council (TFC) got together for a meeting earlier on in the year and filmed a super quick video to introduce themselves and explain a little about what they do. Perfecto! If you fancy getting involved in the TFC yourself, please email NB: This video was filmed pre-COVID-19 before social distancing measures were brought in.

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Meet the TFC 

Meet the TFC: Harry

About Me I’m a veteran in the CHECT game. They’ve done so much for me and the TFC was a great way for me to help give back to the team that gave me so much during my Rb. I’m about to enter my second year of University, which also means I’m unfortunately coming towards the end of my TFC career. I study journalism in the beautiful city of Sheffield – if anyone is from around there I live in Crookes, in a little student house with my girlfriend and…

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Beth in the CHECT office Meet the TFC 

Meet the TFC: Beth

Hi, I’m Beth and I’m 18 years old. When I was around twelve weeks old, I was taken to my GP because my mum noticed a white glow in my eyes. I was finally diagnosed with bilateral retinoblastoma – cancerous tumours in both eyes. I had several rounds of cryotherapy, radiotherapy and chemotherapy before having my right eye enucleated just before my second birthday. I am now 18 and though I’m now in remission, the remaining tumours in my left eye limit my sight to only peripheral vision. Meeting people…

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Profile image of Samih in the garden Meet the TFC 

Meet the TFC: Samih

Hey, my name is Samih and I’m writing this article as a member of the CHECT Teen Focus Council (TFC). A bit about me. I am and have been totally blind with Rb (retinoblastoma) since the age of two. I love all forms of music, I’m a singer/occasional songwriter, alongside that I am a drummer and I’ve started playing and learning the guitar since September 2019. About Teen Focus Council (TFC) The TFC is a group of young people who come together to “EAT PIZZA!!!!” Shouted all the members, happily…

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Katy Peller with a sunny landscape of fields behind her Meet the TFC 

Meet the TFC: Katie

Hi, I’m Katie, and I am 16 years old. I had Rb when I was eight (nearly nine), which, as you probably know, is quite unusual because most people are younger. It does come with the interesting consequence that I remember everything which happened. My right eye was removed, but luckily I had no further treatment. I have a really wide range of things I enjoy. At my secondary school I loved being involved in the extra-curricular life, and ended up being the pupil leader of many music clubs as…

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Beth: My Story My story 

“I make my loved ones proud no matter how difficult things may get.”

17-year-old Beth Holman shares her experiences of growing up with a visual impairment having been treated for bilateral Rb as a baby. Originally published July 2019 on the CHECT website. I don’t remember my retinoblastoma treatment. I remember the check-ups – long days, the anaesthetic and the McDonald’s I always begged for on our long drive home – but not the treatment. But I know that my family can remember it. This encourages me to constantly make my loved ones proud no matter how difficult things may get. When I…

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Teen Focus Council Member Meets MPs

We spoke to Christopher Payne who attended the CHECT parliamentary drop-in event on Wednesday 15th May at Westminster. This was part of World Retinoblastoma Awareness Week 2019, to engage MPs in raising awareness of Rb in their constituencies. Can you tell me a bit about your experiences with Rb? When I was three and a half I was diagnosed with Retinoblastoma in my left eye. My eye was enucleated and replaced with an artificial one at the Royal London Hospital. I was then subject to rounds of Chemotherapy at Great Ormond…

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Q&A With Lesley Geen

Beth Holman interviews Lesley Geen, Support and Information Worker at the Childhood Eye Cancer Trust. Q1. What does your role include? One of the main things that I do is support. I work closely with babies during treatment as well as children, teenagers and adults affected by retinoblastoma but also their families and friends, making sure they have the support the they need. I visit out patients clinics at the Royal London Hospital to see those that come for check ups. I am at the hospital every Wednesday too, where…

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Photo of Harry Harrison News 

Teen Focus Council

CHECT is planning to create a Teen Focus Council, in order to better support teenagers affected by retinoblastoma, and to give them a voice within the charity. CHECT member Kelsey Trevett spoke to Harry Harrison to find out more about the idea… Q: Can you tell me what the Teen Focus Council will be? A: The Teen Focus Council is an opportunity for teenagers to have a voice within CHECT. The idea is to enable teenagers to have a voice in planning events and activities aimed at our age group,…

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Photo of Kelsey celebrating his exam results in the CHECT office with Hayley and Diane Education News 

GCSE results day

On Thursday, Kelsey Trevett joined thousands of children around the country in getting their GCSE results. Here he explains the range of emotions that have been running through his mind since those dreaded exam days… Every teenager is different, but I think there is one thing that pretty much all of us can agree on: exams are a nightmare. Whether it be GCSE exams, A levels or other educational assessments, exams are one of the most stressful, and yet repetitive, aspects of a teenager’s life. I recently collected my first…

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