Interview 

Teen Focus Council Member Meets MPs

We spoke to Christopher Payne who attended the CHECT parliamentary drop-in event on Wednesday 15th May at Westminster. This was part of World Retinoblastoma Awareness Week 2019, to engage MPs in raising awareness of Rb in their constituencies. Can you tell me a bit about your experiences with Rb? When I was three and a half I was diagnosed with Retinoblastoma in my left eye. My eye was enucleated and replaced with an artificial one at the Royal London Hospital. I was then subject to rounds of Chemotherapy at Great Ormond…

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Interview 

Q&A With Lesley Geen

Beth Holman interviews Lesley Geen, Support and Information Worker at the Childhood Eye Cancer Trust. Q1. What does your role include? One of the main things that I do is support. I work closely with babies during treatment as well as children, teenagers and adults affected by retinoblastoma but also their families and friends, making sure they have the support the they need. I visit out patients clinics at the Royal London Hospital to see those that come for check ups. I am at the hospital every Wednesday too, where…

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Photo of a boy having his eyes tested by an optometrist Interview News 

Spreading the retinoblastoma word

Petra Maxwell is CHECT’s Information and Research Manager; she raises awareness of retinoblastoma among healthcare professionals. She sat down with Kelsey Trevett to answer some questions as to what her job entails, and about working at CHECT… Q: Firstly, could you briefly summarise your role at CHECT, and what you do? A: The main part of my role is to raise awareness among healthcare professionals, including health visitors, GPs and opticians, of the symptoms and tests involving retinoblastoma. I also highlight the importance of urgent referrals for children with symptoms…

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Interview News 

‘Lacey has improved my life in so many ways’

When Kelsey Trevett was 16 weeks old, he was diagnosed with retinoblastoma in his left eye and it was removed. Unfortunately, aged five years old Kelsey was diagnosed again, this time in his right eye. His remaining eye was removed when he was six. Now 16, Kelsey has just finished his GCSEs and over the past year has been adjusting to life with his newest companion, guide dog Lacey. Here Christopher Payne, 13, talks to him about his relationship with Lacey, how she has benefitted him and some of the…

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Interview 

Q & A With Patrick Tonks

Theo Sergiou interviews Patrick Tonks, Chief Executive of the Childhood Eye Cancer Trust Q) Why did you choose to apply for the job at CHECT? A) Two or three main reasons. Having worked in the private sector for over 25 years, I decided that I wanted to do something that had more meaning and purpose, so I decided to move into the charity sector. I knew that working for a charity would mean that I could do something that would make a real difference and help other people. I worked in…

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