Category: My story

From being a Vision Express ambassador to attending one of our residential weekends, Kelsey Trevett, 16, talks about his involvement with CHECT over the years… Having been affected by retinoblastoma throughout my childhood, I have had a strong connection with CHECT for the majority of the last 16 years. Their support throughout my treatment and multiple hospital visits was invaluable to my family and me, and as I’ve got older, the opportunities offered to me by CHECT have been a fantastic way to share experiences, stories and (most importantly) laughs…

Christopher Payne, 13, and his family have been involved with CHECT since his diagnosis 10 years ago. Here, Christopher talks about the support he has received and how he is giving back to the organisation to help raise awareness of retinoblastoma… When I was diagnosed with retinoblastoma aged three and a half, there was no one or organisation out there to support me or my family, except CHECT. Being a very rare disease, CHECT is the only UK charity specialising in supporting families affected by Rb, raising awareness of the…