Beth: My Story My story 

“I make my loved ones proud no matter how difficult things may get.”

17-year-old Beth Holman shares her experiences of growing up with a visual impairment having been treated for bilateral Rb as a baby. Originally published July 2019 on the CHECT website. I don’t remember my retinoblastoma treatment. I remember the check-ups – long days, the anaesthetic and the McDonald’s I always begged for on our long drive home – but not the treatment. But I know that my family can remember it. This encourages me to constantly make my loved ones proud no matter how difficult things may get. When I…

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Photo of a man playing Goalball My story News Reviews 

‘I can’t imagine my life without Goalball’

Sixteen-year-old Kelsey Trevett gives the lowdown on Goalball and how it has transformed his life…  As a blind or visually impaired teenager, it can be difficult to find a sport-related activity that is fully accessible: the mainstream games of football, cricket and rugby were, after all, hardly designed with the blind in mind. Goalball is the first, and only, sport designed with the intention of being played by blind and visually impaired athletes, but that’s not to say it can’t also be played by sighted people too. Today, it is…

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Photo of Kelsey at the Vision Express store opening My story News 

My involvement with CHECT

From being a Vision Express ambassador to attending one of our residential weekends, Kelsey Trevett, 16, talks about his involvement with CHECT over the years… Having been affected by retinoblastoma throughout my childhood, I have had a strong connection with CHECT for the majority of the last 16 years. Their support throughout my treatment and multiple hospital visits was invaluable to my family and me, and as I’ve got older, the opportunities offered to me by CHECT have been a fantastic way to share experiences, stories and (most importantly) laughs…

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Photo of Christopher Payne and other teenagers at Global radio studios My story News 

CHECT and teenagers – taking the journey together

Christopher Payne, 13, and his family have been involved with CHECT since his diagnosis 10 years ago. Here, Christopher talks about the support he has received and how he is giving back to the organisation to help raise awareness of retinoblastoma… When I was diagnosed with retinoblastoma aged three and a half, there was no one or organisation out there to support me or my family, except CHECT. Being a very rare disease, CHECT is the only UK charity specialising in supporting families affected by Rb, raising awareness of the…

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